Last week author and Associate Professor Daniel Bowman Jr. shared some of his personal experiences as a professor and poet on the autism spectrum. This week continues that interview with practical solutions for individuals making earnest attempts to connect with the autistic community and advocate for autism acceptance.
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Haley Moss is an artist, author, and autism advocate attending law school at the University of Miami. Her work is nationally recognized, and she is the author of “Middle School: The Stuff Nobody Tells You About” and “A Freshman Survival Guide for College Students With Autism Spectrum Disorders.” This week she shared how she grew up with a positive autistic identity and offered suggestions of ways parents and family can improve autism acceptance and advocate for their loved ones on the spectrum.
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Brent White is autistic, dyslexic and multiply neurodivergent. He designs and directs adult programs for neurodivergent young adults for a non-profit in Berkeley, California. Programs include an adult transition program he designed for the Berkeley Unified School District. Brent White is a grassroots researcher, scholar and advocate. This week he shared some insight for non-autistic parents and other autism advocates who are trying to support their loved ones in the most respectful and meaningful ways.
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It’s a point of contention between some people on the spectrum and neurotypical autism advocates. How we advocate really is just as (if not more) important than the intention to simply advocate at all. In particular, let’s explore the right to identify as an autism ally and the traits needed to genuinely support those on the spectrum. Not everyone who calls themselves one is really on the side of autistics. In any disagreement, a dose of humility and introspection is needed if anyone is expected to learn anything or if any progress will be made (See my previous post: The Roles and Responsibilities of the Neurotypical Autism Advocate). This week I’m asking neurotypical parents to review why autism advocacy issues exist and consider ways to improve their efforts. The more I read and listen to people on the spectrum, the more I learn about better ways to support and accept them. Let’s listen to autistic advocates and be open to change.
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Courtney Johnson is a writer, public speaker, and Chemistry Ph.D Candidate on the autism spectrum. Courtney manages the website AutismAchiever.com, where her goal is to share information she has learned through her varied life experiences to help individuals on the spectrum reach their full potential. Last week Courtney shared some of her personal experiences growing up on the spectrum. This week she discusses her advocacy work and how parents can best advocate for their children.
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Bob Christian, “Aspergers Poet,” is a father, husband, and poet on the autism spectrum. He blogs about his life, on The Ramblings of Bob Christian. He is also author of a collection of poetry called Behind the Mask. This week, he shared his experiences on receiving a late diagnosis and having two neurotypical daughters.
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Photo by Peter Brown
Erin Clemens is an author, speaker, consultant, and advocate on the autism spectrum. She recently presented at a TEDx conference on “The Natural Rhythm of Stimming.” This week she shared some of her personal experiences as someone on the spectrum*. She hopes that by sharing these experiences, people can learn from what she has been through, and apply it to what may help others on the autism spectrum.
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Samantha Crane is the Director of Public Policy at the Autistic Self Advocacy Network’s national office. Samantha graduated from Harvard Law School and served as a staff attorney focusing on enforcing the right to community integration as established by the Supreme Court in Olmstead v. L.C. This week Samantha shared some of her background studying law and how she uses her experience to publicly advocate for others on the spectrum.
Alix Generous is a professional speaker, neuroscientist, author, tech consultant, and observational comedian. From 2013 to September 2016, she was the co-founder for Podium (formerly AutismSees), a social impact company that creates technology to help high functioning autistic millennials improve their presentation skills. In her 2015 TED talk, she comedically shares how tech improved her public speaking skills. This week she shared some of her personal experiences growing up on the autism spectrum and the current state of autism-related technology.
Kirsten Lindsmith is an author, artist, consultant, and autism advocate from New York City. After receiving an ASD diagnosis at the age of 19, she began co-hosting the online television show Autism Talk TV and speaking at conferences and events about her experience as a young woman on the spectrum. Kirsten has written columns for Wrong Planet and Autism After 16, and was profiled in The New York Times. Kirsten graduated from the University of Massachusetts Amherst with a degree in Vertebrate Ontogeny and Phylogeny. She currently works as a therapist in partnership with Melody of Autism, and as a consultant for behavioral and sensory needs.
This week Kirsten discussed the oversimplification in autism advocacy (classifying it as too positive or too negative), some common misconceptions, sensory sensitivities, and how families can become better allies to people on the spectrum.
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